NOTES FOR PHYSIATRIST TODAY

We'll see if this makes a difference.  Will also post updates from CHIRO and PT that didn't work for nerve damage...maybe.

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PHYSiATRIST at Compass Medical – July 17, 2:30 w/ Dr. M's PA E.

WHAT IS WRONG WITH MY RIGHT LEG?????

SPECIFICALLY, MY RIGHT SHIN 
(And calf and piriformis)?

*Something has been slowly 
Taking over my right leg 
Since wearing wrong footwear 
And overexertion on a steep treadmill in March, 
Extensive walking for my job, etc., 
And extensive walking in Chicago in April.

* To Chicago ER in April 
To rule out a blog clot

*(Ultrasound again July 5^th 
Through Urgent Care at Compass t
To rule out a blood clot per Dr. Broderick – 
Cause my knee feels thick- 
Expired Doxy 7/3-7/5 
Reduced the swelling that was spreading from the shin to the calf)

·        Problem has progressed from:

-(Inverted hip of some sort since birth) – 
PT recently corrected it???? (He said)

-My right piriformis – 
(BURNS  - at night usually – use cold clay bag) – 
Can often pinpoint the injury – 
But then seems to radiate as well

-Through my right hip – 
Feels floppy sometimes/gives out

–To the right SHIN ???????/achey, TIGHT, raised swelling ????? 
Like a bruise, and with a line of spots at one side – 
One of MY BIGGEST CONCERNS:
IT’S BEEN SINCE APRIL

– And right calf/numb and tight 
Where swelling extended/expanded like cellulitis 
** (see below)

– And now the right knee/achey, stiff, swollen off and on
BURNS at night – 
Gives out

– And this morning the right ankle/stiff

-          All of it also has tingling and spasms  
      Off and on....

----A little in the left leg – 
But minimal, 
Compared to the right leg

*Acupuncture weekly since …. May?

*Chiropractor in April 
(Didn’t help – 
Actually hurt my left shoulder and neck with the ‘adjustments’)…. 
Have XRays and report here today 
(Sciatica DX)

*PT May – 9 appointments 
And only 10% improvement…
 opted not to continue… Still do the exercises 
To strengthen core and increase flexibility – 
But not helping with nerve pain-
Makes it worse?

*Anti-inflammatory (A-I) diet 
When able – 
And A-I tonics 
At least weekly?

*Went to ID Dr. in June…. 
Supposedly Lyme Specialist – at South Shore Hospital… 
Told me I needed more sleep 
And recommended melatonin.  
Worked for one night – 
Then rebound insomnia with it, 
So stopped.  
Also read that melatonin is not recommended for immune issues,
Which Lyme is.

*Also to Dr. end of June 
For skin ‘rash’, 
Cellulitis? 
Wild parsnip? 
Shingles? - 
The ‘burns’ still show on elbow, and by arm pits…. 
Maybe part of what’s on calf now, too?

*I had asked about my leg, 
And the patch on my right shin 
At the Chiropractor 
And PT and 
SShore ID Dr… 
No one has given an answer.  
No one knows.

*Since no one knows, 
It’s fair to hypothesize 
That it’s STILL the LYME.

Have been in continuous stages 
Of more unwell or less unwell 
Since Lyme DX of 6/15 – 
For over three years.

The right leg 
Is just the most recent ‘flare up’ – 
And which has lasted the longest – 
Aside from the brain issue at the start 
(And which is still unresolved)
Re: light sensitivity, 
And other symptoms 
Like those of a concussion, 
But which have gotten less acute…

-          …Primarily due to changes in my lifestyle: 
      Retired from my self-employed career 
      Of 26 years 
      As a music therapist, 
      Resigned from much church committee work & choir director), 
      Lie down almost daily,

-          …And anti-inflammatory diet and cleanses, 
      Try to get some form of exercise daily (gardens), 
     Work Part Time as a home health aide for the summer, 
     Will work Full Time in Easton schools again in the fall 
     With MUCH walking daily…

LYME IS INFLAMMATORY

My SHIN is INFLAMED…since APRIL. 

**Looked like possible deep tissue fascia cellulitis 
JULY 4^th holiday, 
And was in CT, 
Where on call Dr of Compass 
Would not give even two days of antibiotics 
Over the phone-
Said I needed to ‘be seen’ – 
Which would have been AWFUL for my health 
To go to the ER 
On the JULY 4^th holiday.

SO I DROVE BACK TO MASS AT MIDNIGHT... 
(Hesitant to even drive after dark - 
But drove on the adrenalin of thinking it could go septic - 
Into my blood stream 
And/or lymph nodes) ...
To take the expired Doxy 
That I’d saved for an emergency.  

THE SWELLING AND REDNESS STARTED TO SUBSIDE. 
It had to have been some form of bacterial infection.

LYME is a cork screw shaped spirochete that is hard to eradicate.

IT IS NOT “100% CURABLE”.

IT CREATES A BIO FILM TO PROTECT ITSELF.

AND USES THE PATH OF LEAST RESISTANCE ON ITS HOST 
TO SURVIVE – 
i.e. whenever there is a weakness in the host.

With me, 
It’s been my lungs & asthma
Ant then pneumonia, 
My brain
Hyper multitasking for decades
Now have white spots throughout my brain,
And can’t multitask.
Everything takes much longer to do… 
So can actually do much less….

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In peace and wellness, 

Lisa