Firstly, Good Morning,
October 28, 2017
October 28, 2017
Went to NYC last weekend.
An Experiment.
Hadn't been in .... 3 years? Missed it.
Drove half way Friday evening -
stayed at my mom's in CT over night...
Drove the rest of the way
into midtown Manhattan Saturday morning at 8
and parked in a garage with online coupons :)
Next year,
for our version
of a closer 'parents weekend' with Clara than in Washington, DC,
I take the train;
Price will be comparable.
An Experiment.
Hadn't been in .... 3 years? Missed it.
Drove half way Friday evening -
stayed at my mom's in CT over night...
Drove the rest of the way
into midtown Manhattan Saturday morning at 8
and parked in a garage with online coupons :)
Next year,
for our version
of a closer 'parents weekend' with Clara than in Washington, DC,
I take the train;
Price will be comparable.
Was able to do it -
Came back Monday in two parts, too -
stopping in CT again...
but pretty worn out all in all.
Had to close my eyes Saturday...
getting head rushes...
Walked many miles -
And Mitch keeps the pace sprightly! ...
Though great to visit with Clara and him:
Took in a half price Broadway show, "Anastasia" (excellent!),
Strolled Central Park (beautiful!),
Ate good food (with second cousin, Justin, too!),
Enjoyed Sabon's pamperings,
And got down to the 911 Memorial (sombering....).
Came back Monday in two parts, too -
stopping in CT again...
but pretty worn out all in all.
Had to close my eyes Saturday...
getting head rushes...
Walked many miles -
And Mitch keeps the pace sprightly! ...
Though great to visit with Clara and him:
Took in a half price Broadway show, "Anastasia" (excellent!),
Strolled Central Park (beautiful!),
Ate good food (with second cousin, Justin, too!),
Enjoyed Sabon's pamperings,
And got down to the 911 Memorial (sombering....).
Then it was back to the challenging work week...
***********************************************
***********************************************
NOVEMBER - at four months since Lyme infection
11/16/15
Mon. morning work site in Plymouth
Mon. morning work site in Plymouth
Head bothering me
+ too much activity past week or so...
too much sound, thought, light –
even the sound of my own voice
+ too much activity past week or so...
too much sound, thought, light –
even the sound of my own voice
1st
day back to church yesterday
Sat
in the back –
speakers too loud -
cause I’m having some caffeine now?
speakers too loud -
cause I’m having some caffeine now?
1
cup/day the past week or so –
seems to directly correlate….
bummer
seems to directly correlate….
bummer
Going
to take 2 pellets of the Bella Dona tonight or tomorrow
Cupping helped my asthma –
a lot –
a lot –
Double
cupping
(30 mins – 2 x 15 –
change locations on my back)
(30 mins – 2 x 15 –
change locations on my back)
Cupped then 2 days later –
then 3 days later
+ again 3 days later –
will do tonight or tomorrow again.
then 3 days later
+ again 3 days later –
will do tonight or tomorrow again.
No pro air!
It’s addictive:
makes it so I have to use more –
my symptoms worsen –
Shame on the pharmaceutical companies
for producing that in place of the one that used to work –
in the name of ‘(decreasing) pollution’ -
yeah, right.
It’s addictive:
makes it so I have to use more –
my symptoms worsen –
Shame on the pharmaceutical companies
for producing that in place of the one that used to work –
in the name of ‘(decreasing) pollution’ -
yeah, right.
Asthma
so bad for a few weeks,
I was up in the night using the inhaler –
also the ASTRA supplement
+ ‘breathe deep’ tea –
looked forward to acupuncture for it.
I was up in the night using the inhaler –
also the ASTRA supplement
+ ‘breathe deep’ tea –
looked forward to acupuncture for it.
Janet told me to ‘cup’
Duh! –
but hadn’t thought of it before she
reminded me.
****************************************
but hadn’t thought of it before she
reminded me.
****************************************
So, here I am,
reading these notes in my health journal of 11/15,
on 1/17, as I try to write a book about all of this -
and I’m back from a visit to the Urgent Care at 7 a.m.
reading these notes in my health journal of 11/15,
on 1/17, as I try to write a book about all of this -
and I’m back from a visit to the Urgent Care at 7 a.m.
My back hurts from
trying to breathe…
(Dr. NP, again) –
prescribed a tapered prednisone for asthma
that has snow balled again –
from smoke of a New Years Eve fire outside
to many smaller indoor fires with too much wood (so too much smoke at the front of the insert when it’s left unattended and burns down),
and then a Zumba class that ‘blew my wad’. Now at two weeks
of using a nebulizer and Pro-Air inhaler
about 7 times each day –
can’t resolve it.
ProAir again made it worse –
addictive:
needing more to have the same effect.
But in the middle of the night,
I’m not going to crank on the noisy nebulizer….
*******************************************
prescribed a tapered prednisone for asthma
that has snow balled again –
from smoke of a New Years Eve fire outside
to many smaller indoor fires with too much wood (so too much smoke at the front of the insert when it’s left unattended and burns down),
and then a Zumba class that ‘blew my wad’. Now at two weeks
of using a nebulizer and Pro-Air inhaler
about 7 times each day –
can’t resolve it.
ProAir again made it worse –
addictive:
needing more to have the same effect.
But in the middle of the night,
I’m not going to crank on the noisy nebulizer….
*******************************************
11/20/15
- 11 am
Janet, last night.
Said to cup another month –
so 8-12 times by Christmas for sure – s
he said to cup past the point of asthma recovering.
Said to cup another month –
so 8-12 times by Christmas for sure – s
he said to cup past the point of asthma recovering.
She put 5 needles around my
left elbow, too –
x-ray to day @ urgent care (NP again)
x-ray to day @ urgent care (NP again)
Ruled out calcium deposits
or bone cancer –
said tendonitis –
said tendonitis –
I
bought a strap for it –
If Lyme related joint pain,
would be more broad she said –
that’s happening too – (small of back, knees)
would be more broad she said –
that’s happening too – (small of back, knees)
Last
few days – Rained, too, tho
11/25/15
Gaps in my thinking,
e.g. after typing – emails, etc. –
noticing that letters are missing –
endings of words wrong, eg verb tenses.
e.g. after typing – emails, etc. –
noticing that letters are missing –
endings of words wrong, eg verb tenses.
Feeling
mortal –
not afraid to die –
wondering what
things will be like a year from now.
not afraid to die –
wondering what
things will be like a year from now.
Feeling weepy, overwhelmed –
pressed to do so much
cleaning + cooking + driving + finishing display cabinets + C coming home 2 wks from Sat. + G never shutting up –
can’t listen to the radio –
another bright sunny day –
full moon –
(maybe why the Patriots/Bills game was so weird – waxing full moon)
pressed to do so much
cleaning + cooking + driving + finishing display cabinets + C coming home 2 wks from Sat. + G never shutting up –
can’t listen to the radio –
another bright sunny day –
full moon –
(maybe why the Patriots/Bills game was so weird – waxing full moon)
Taking G to lunch -
1/2 day of school
1/2 day of school
at
ARC work site in Brockton now 9:30
laundry, dishes, groceries,
dog…
to groomer for 1st time yesterday –
so stinky – too big + lame for tub –
too cold to bathe outside –
couldn’t get her to leave the car.
to groomer for 1st time yesterday –
so stinky – too big + lame for tub –
too cold to bathe outside –
couldn’t get her to leave the car.
need
to chill –
can’t
drink coffee (did last few days)
+
must exercise everyday.
DECEMBER - at five months since Lyme infection
12/11/15 – 10:50 a.m. – Fri
Just went to A Healthy Way
in Somerset
on my way to work in Swansea –
Janet (Lee) Cabrera recommended at last acupuncture –
on my way to work in Swansea –
Janet (Lee) Cabrera recommended at last acupuncture –
Got the Ningxia Red – oils +
antioxidants to try –
if works, will get the big bottle…
interesting to hear D (the owner)…
she knew I was blood type A(+)
before I told her
when she asked
if works, will get the big bottle…
interesting to hear D (the owner)…
she knew I was blood type A(+)
before I told her
when she asked
Per D:
Lyme loves:
- Blood Type A
- Blood Type A
-
acid
(coffee)
-
sugar
(sweets, alcohol)
-
stress
-
yeast
I think the deer tick borne
diseases are going to thin the human population.
D also recommended ParaGone
as a cleanse for parasites and Xylamend as an anti-inflammatory
Told me @ a woman
who wrote down all her symptoms of Lyme–
on two 8 X 10 sides of a paper
+ who said she never knows which symptoms will come up day to day.
who wrote down all her symptoms of Lyme–
on two 8 X 10 sides of a paper
+ who said she never knows which symptoms will come up day to day.
Need to focus on a stress-free
day
+ a strong immune system
+ a strong immune system
12/15/15 – 10 a.m.
Interesting –
just had my annual physical - with Dr. B –
but she wasn’t there.
Friend, Susan, here also for her annual w/her –
but said hasn’t seen her in years –
I didn’t see Dr. B except in the hallway,
since my last annual –
so no visits at all related to my Lyme Disease.
just had my annual physical - with Dr. B –
but she wasn’t there.
Friend, Susan, here also for her annual w/her –
but said hasn’t seen her in years –
I didn’t see Dr. B except in the hallway,
since my last annual –
so no visits at all related to my Lyme Disease.
Saw Dr. P for the ‘checkup’
+ JW, N.P. for
gynie exam
Dr. P said primary care is for preventative or acute –
asthma, UTI, diabetes, cholesterol
(???? - but some of those are chronic!)
(???? - but some of those are chronic!)
J. referred to research that
says chronic Lyme doesn’t exist.
I clarified it as post-Lyme
+ told her @ the new clinic @ Spaulding.
I clarified it as post-Lyme
+ told her @ the new clinic @ Spaulding.
I talked @ medical field
being stymied @ Lyme –
don’t know what to do -
+ that it will weed out the human population
don’t know what to do -
+ that it will weed out the human population
+ asked Dr. P. @
spyrochetes….
he was stymied.
he was stymied.
They didn’t know what to say
–
other than their spiel
@ beware of listening to friends and family kind of thing
other than their spiel
@ beware of listening to friends and family kind of thing
How @ articles in the
newspaper?
How @ the Spaulding Clinic
having to open on the down-low
cause it’s so controversial?
having to open on the down-low
cause it’s so controversial?
-Like fibromyalgia had been.
-like Women’s research was
for so long –
cause too many variables
+ just applied the male research
cause too many variables
+ just applied the male research
12/17/15 – 3:50 pm Brockton
Oak St. Bldg.
“only 2 patients in front of
you” – oy.
Glad we have 'appointments' –
Graham’s 1st concert @ 7:00 –
Dr. LL let me come an hour earlier than scheduled
Graham’s 1st concert @ 7:00 –
Dr. LL let me come an hour earlier than scheduled
3 mo follow up
“well how are you feeling?”
–
my response will be: “Like I have Lyme Disease”.
my response will be: “Like I have Lyme Disease”.
Janet L-C said “you don’t
have Post- Lyme,
you have active Lyme Disease”
you have active Lyme Disease”
+That makes sense –
since I have symptoms I’ve had since having Lyme
+ which have not gone away –
spyrochetes are in my brain still?...
since I have symptoms I’ve had since having Lyme
+ which have not gone away –
spyrochetes are in my brain still?...
+Joints, knees acted up
around Thanksgiving -
elbows kind of a problem ongoing
more so than before Lyme –
elbows kind of a problem ongoing
more so than before Lyme –
Swollen glands left side of face 1 ½ wks ago -
+ then the ongoing head issue –
pressure across front -
Some ache
+ hypersensitive to Light, sound,
visual strain, cognitive strain –
which all can trigger
a low grade ongoing ocular migraine
lasting thru a day
waking up w/ a headache
+ off balance this wk.
+ off balance this wk.
So I’m thinking of deer –
how they live with this –
maybe 2016 will be the year of Deer Lisa –
vegetarian?
Daily exercise, minimal alcohol –
minimal caffeine, outside lots
how they live with this –
maybe 2016 will be the year of Deer Lisa –
vegetarian?
Daily exercise, minimal alcohol –
minimal caffeine, outside lots
12/26/15
Chest pain past 1 ½ wks – Rt side
last
48 hours, went to back as well
lightheaded
+ dizzy swooshes
achy
upper body
walked
to + from Xmas Dinner at Ziglers
as
a low grade form of stress test for my heart
(female heart probs can present on the Right)
(female heart probs can present on the Right)
called Connie + Korin from my office floor
@ going to Urgent Care this morning
XRay + EKG @ Compass Medical/ED
(9 people in front of me when door opened)
Dx:
Pleurisy – "viral"
Pleurisy – "viral"
So
tapered prednisone
(no
ibuprofen w/ (arrow up)
But
can take acetaminophen
EKG
looks good
+
not pneumonia
or
infection
Monique
– Medical Asst. from Acushnet
schooled in New Bedford
lives in Taunton
Marie,
P.A. – Haitian
Said “99% of us don’t believe in Chronic Lyme” (what @ Post Lyme?)
+ said that the symptoms +
disease are cured w/ medication if caught in time
talked
w/ her @ incorrect PCR blood test @ Good Sam ER
+ Dr. LL (ID Doc next door) said was wrong one –
did Immunoglobulins - and tested poistive to Lyme
+ Dr. LL (ID Doc next door) said was wrong one –
did Immunoglobulins - and tested poistive to Lyme
she
talked @ need for specialists (eg for Lyme)
+ to be referred there
+ to be referred there
still
didn’t answer why my symptoms are persisting –
When took meds timely
+ so ‘cured’?
she
did say something like
'time
will tell more w/ more studies, experience, etc.'
Connie’s
work colleague, SP, had Lyme @ same time as me
+ has persistent vision – lightheaded problems
+ has persistent vision – lightheaded problems
The
conversation w/ P.A. Monique
stemmed from me asking if the pleurisy – inflammation –
is related to Lyme – also involving inflammation?
stemmed from me asking if the pleurisy – inflammation –
is related to Lyme – also involving inflammation?
She
didn’t think so – see other side (see that as chronic Lyme I guess)
I hadn't asked anything about 'chronic Lyme' -
so why did they refer to it that way?
Just to dismiss it?
so why did they refer to it that way?
Just to dismiss it?
Marie
said not a heart attack –
After
a week would be 'coding'
+
not angina…not presenting as it
+
that steroids will help w/ other inflammation in body – eg ear
----------------------
Pleurisy
coincided w/ a waxing full moon
----------------------
Prednisone Rx: 5, 4, 4, 3, 2, 1 ?!
(Something
was missing cause was still 6 days)
Blood
type A+
*****************************************
These entries chronicle
some of the inflammatory nature of Lyme...
in my joints, lungs, head, ear, vision, face...
and then something weird that was happening
with my heart for a while too...
blood pressure was abnormally high.
More next time -
for the six month mark since the Lyme infection,
and how it remained unresolved.
Thanks for reading,
Peace out,
and good health to you and yours.
--Lisa :)
*****************************************
These entries chronicle
some of the inflammatory nature of Lyme...
in my joints, lungs, head, ear, vision, face...
and then something weird that was happening
with my heart for a while too...
blood pressure was abnormally high.
More next time -
for the six month mark since the Lyme infection,
and how it remained unresolved.
Thanks for reading,
Peace out,
and good health to you and yours.
--Lisa :)
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